Unbound: Notes from a Reluctant Disability Activist - Paperback

by Ben Mattlin (Author)

This insightful and often witty collection of essays charts the making of a reluctant disability activist--including his commentary for NPR, the New York Times and elsewhere.

Ben Mattlin was born in 1962 with spinal muscular atrophy, a congenital and progressive neuromuscular weakness. He never stood or walked but grew up expecting a normal life. In this book of essays, he chronicles that life and also charts his growth as a reluctant disability activist and public intellectual.

Mattlin's disability was from birth. Raised in a family that insisted that he be educated in a mainstream setting, he never thought about his disability as being an obstacle until adulthood. It was not until he had graduated from Harvard and could not find a job that he began to understand what disability rights activists were talking about.

These collected short pieces chronicle Mattlin's intellectual coming-of-age including his beginnings, difficult conversations about disability, the social aspects of being disabled in a nondisabled world, and a wider perspective as the author looks back on his sixty years of disability. The book contains a variety of essays intermixed with a few edited podcast transcripts. Some of the pieces are deeply personal; others are stridently political. All of them are guaranteed to make readers see life and the world in a new way.

Altogether, this collection is a frank, unsentimental examination of some of the most important and moving issues of our day--always rendered with intelligence, sensitivity, and a liberal sprinkling of humor.

Author Biography

Ben Mattlin is freelance writer and the author of four books: Unbound: Notes from a Reluctant Disability Activist (2025), Disability Pride: Dispatches from a Post-ADA World (2022), In Sickness and in Health: Love, Disability, and a Quest to Understand the Perils and Pleasures of Interabled Romance (2018), and Miracle Boy Grows Up: How the Disability Rights Revolution Saved My Sanity (2012). A Harvard graduate, Mattlin has published essays in the New York Times, the Washington Post, the Los Angeles Times, the Chicago Tribune, and Time, and he's been featured on NPR, "Here & Now," NowThis News, ABC's Prime Time Live, CNN, E! Entertainment Network, and independent radio stations across the U.S., Canada, and the U.K. He lives in Los Angeles with his wife, and they have two grown daughters.