Loving Leanne: Living with Rubinstein-Taybi Syndrome - Paperback

by Dorothy Ade (Author), Debbie Roome (Author)

Leanne never married, never had children and never lived on her own. She never drove a car or caught a bus unaided. She never cooked a meal, washed her clothes or ironed a shirt. She could not because she was born with a condition called Rubinstein-Taybi Syndrome (RTS). This rare genetic disorder causes mental and physical disabilities and she was always dependent on others. In spite of this, her life was and continues to be an inspiration to many. Leanne's life story is told by her mother and sister and they examine the highs and lows of caring for a mentally and physically disabled person. The book is divided into seven chapters which look at Leanne's early days, how Rubinstein-Taybi Syndrome affects her, her schooling, her extensive medical history, her spiritual and social life, and the ongoing process of caring for her daily. It also includes a list of RTS characteristics and problems and explains how these play out in daily life. The final chapter details Leanne's last days and how she died with dignity knowing that she was going to heaven. Covering the entire 47 years of Leanne's life, this book is a story of hope and triumph with a healthy dose of reality mixed into it. An ideal read for anyone who is caregiver to a disabled person or for parents who have a child with RTS.

Author Biography

Debbie Roome was born and raised in Zimbabwe and later spent fifteen years in South Africa. In 2006 she moved to New Zealand with her husband and five children. Writing has been her passion since the age of six and she loves to write stories that touch people's lives and turn them towards God. Over the years she has won many awards and trophies for her work, including placing first in the Rose & Crown Novel Writing Competition in 2009. Debbie's writing has opened doors for public speaking and she is often asked to share her life story and her experiences as a writer. Her books are available through all the major online booksellers and titles include Embracing Change, Contagious Hope, Magnitude 7.1 & 6.3, and Cyber-Bullying is Never Alright.