- SKU: 9798900520292
- BARCODE: 9798900520292
- VENDOR: BooksCloud
Dancing in the Face of Death: A Journey of Love, Caregiving, and Courage amid a Dementia Diagnosis - Paperback
Couldn't load pickup availability
Description
by Susan L. Koen (Author)
A story of choosing love, integrity, and courage when life changes everything
When Susan's partner, Barbara, was diagnosed with the behavioral variant of frontotemporal dementia (bvFTD), a fatal genetic brain disorder, life as they knew it took an unexpected turn. In Dancing in the Face of Death, Susan encapsulates their journey through this life-changing diagnosis, beautifully weaving together the challenges of caregiving and illness with the power of love and living intentionally.
This intimate memoir follows Barbara's experience as the first person in the US to receive a gene replacement in her brain as part of an FTD clinical trial. Even as Susan and Barbara navigated the changes and challenges brought by this disease, they continued to live with integrity, commitment, and courage. Susan captures both the most heartbreaking and heartwarming moments of their life together while also shining a light on the difficulties of anticipatory grief as a loved one changes before your eyes.
Dancing in the Face of Death is both a celebration of Barbara's fight for a cure and an effort to raise awareness for FTD, a condition that is often misdiagnosed and inaccurately treated. Susan and Barbara's story is a testament to how strength, devotion, and love endure-even in the face of loss.
Reviews
Exceptional Support and Clean Code
I was impressed by how fast the support team responded to my questions. Even as someone with basic coding knowledge, I found the theme incredibly easy to work with. The code is well-organized, and everything runs smoothly.
Reliable Theme with Excellent Customer Service
After trying multiple themes, I finally chose Wokiee — and haven’t looked back. It’s reliable, modern, and easy to customize without coding. What impressed me most was their support team: fast, helpful, and willing to assist even with third-party issues. That level of service is rare!
Beautiful Design and Great Flexibility
Wokiee is hands down the best Shopify theme I’ve used. The design options are stunning and fully customizable. I was able to build a high-converting store without any external developers.
Top-Notch Support and Regular Updates
The customer support team is incredible — helpful, responsive, and very professional. They’ve helped me resolve everything from layout tweaks to app integrations. Plus, the theme is regularly updated with new features.
Amazing Customization Options"!
Wokiee gave me full creative control over my store’s layout and visuals. The theme’s design blocks are so flexible that I could create something truly unique — without touching a single line of code.
High-Quality Theme with Professional Code
You can tell Wokiee was built by pros. The code is clean and optimized for performance. No bloated features — just what you need. My store loads fast and looks great on all devices.